Thursday, December 26, 2019
For those who dont know i have 2 primatpry AAC apps i use on a regular basis coughdrop and prolaul2go, i regularly a, switching between them for various reasons through out the day. However their vocabularly set up and language (how you find where the words are ) is very diffrent. Since im constantly bouncing between these two apps i need them to umm have some uniformity cause its a lot to master both of them with how much my brain has been having issues lately, so im going to try to match the prolquo2go to my coughdrop app because it seema like the correct direction as it works a bit easier ish with my brain right now for language lay out,
There will still be diffrences like how i add endings and such but hopefully this helps thing be more effective in general!
Friday, November 1, 2019
- body language and "behavior" ie what people generally call expressing emotions
- sign language
- letter board
- PECS (picture exchange communication)
- PODD book
- Paper and pencil
- Symbol boards
- Objects used for communication
- Dedicated devices like a Dynavox
- Eye Gaze based AAC devices
- iPads, tablets and phones with full comprehensive AAC apps
- passing notes
- tik tok
- and other social media and online forms of communication
the first is something that i see all the time all year, and that is the need foir earlier introductipon to AAC and more public knowledge of what AAC even is, it happens at least 6 times or more a month a parent mentions in a group im in their child is speech delayed, has unreliable speech or is entirely non speaking., and I ask if they have started AAC yet. 9 out of 10 times i get a no and on a rare occasion i get "we tried they were not interested," (which sounding like the parent had given up ion AAC all together i try to find a way to encourage them to not give up because its so so critical to never give up) all to often even with kids ages as old as 9, 10 and 15 i have met parents who have never heard of AAC, or who have bee discouraged from AAC or told to wait or want to wait, we need to change this! we need to start making AAC a first priority, communication aacess and sensory supports should be a top priority.
the other topic i want to discuss is the critical need for more AAC user representation, I remember when speechless came out i was inlive because JJ was a real AAC user, and he was a real person treated like a real person, not some plot device or a thing to motivate the speaking non disabled people in the show. there was so much that meant to me. but that was only one show, and yeah it was far from perfect but a huge step. Here is the thing though AAC acceptance month just wrapped up and still the majority of the voices in that seem to be parents SLPs and AAC orgs, all important voices but we need to shift to making the primaryh voices of AAC thing AAC users themselves! all AAC programs should highlight users and make 98% of their surveys and work around AAC user feed back, with SLPs parents and teachers and app staff being second,
third we need a lot more resources for adults starting out with using AAC, all the resources are geared toward kids, and we need resources for helping kids but we need ones for adults just starting out with AAC for whatever reason they are using AAC. Now when I say rresources geared towards adults i dont mean you need to make them boring, we like to have fun too! we like music and games and books ect! but even changing wording for modeling for kids, to activities you can do to work on aac and ways to get to know your device! fun games! ect
anyways sorry this is worded a mess im tired and this is chunky and such but i did want to get something out on Autistic speaking day
Thursday, September 12, 2019
Thursday, August 1, 2019
however things didnt go as planned, and as i got out of the car tragedy struck! my ipads caught between the seat and the side of the door as i stood up, ad this was followed by a loud *crack* i knew immediately what had happened! i looked at my device and the screen was shattered. lies streaked across the screen and bits of glass moved around and crunched under the screen protector as i poked it to make sure it was still responsive. while it still responded the device was no longer safe to use, and using it would put it and much higher risk of damage. on top of that i had no idea how much that accident damaged or didn't damage the case, and water getting into the cracks in the screen would be catastrophic/ do horrific peppermint unfixable damage. and would likely make it impossible to back up the device once i was home.
so this meant ipad had to go into the locker and i was going to have to rely on the letter board i had brought with me, i really cant stress enough how important and critical it is to always have at least one or two, if not more, low tech AAC options available as back ups, while i had originally planned the letter board to be with me in most of the water rides, as it would be unharmed, it because my only means of communication that day. it made the day possible to continue on with, having the back up meant i was able to a lot easier recover from the suddenly destroyed aac device, and be able to enjoy my day, knowing id get my device fixed. i didnt have to sit freaking out about not having a communication method i just needed to process the method was changed and that id be low tech for a while, until we got the device fixed or home to a laptop,. and i had to deal with the initial omg my device!!! but then it was ok i have communication access im going to be ok!
low tech supports are extremely important even when you have a full comprehensive device not only because you never know what accidents might happen but because they can just go more places to! i can go and dive with pictures and a letter board, thats a lot riskier with a device in a case, evne a good case!
i really cant stress enough
low tech AAC
low tech aac supports are critical
you need /both/ low and high tech it should never be one or the other!
seriously always have at least 1 or two low tech AAC support as back up!
low tech AAC is just as valid and important as high tech AAC
Monday, April 29, 2019
Intermittent AAC user: someone who tends to use AAC in short bursts and whose primary form of communication is vocal speech, often because AAC use is for specific situations .
Part time AAC user: individuals who rely on AAC At least some of the time. Many part time AAC users rely on AAC for 25 to 70 percent of communication needs but this is not all part time AAC users.
Full time AAC user: people who use AAC (including sounds screeches and behaviors and gestures ) for all their communication needs
AAC as primary form of communication: individuals who primarily rely on AAC over vocal speech weather they are part time or full time AAC users.
AAC as secondary form of communication: people who plan on using AAC in general even though they aren’t constantly using it and plan to use it in a variety of situations.
AAC as back up form of communication: individuals who use AAC as needed either in emergencies or when speech goes out or when in overload or other situations in which AAC is necessary for them to get their message across
Multimodal Communicator: using more than one form of AAC of method of communication, basically someone who has a range of AAC tools, and can also be someone who uses a range of AAC tools and changes between communication styles regularly or semi regularly, his can be switching between high tech to low tech then to asl then to high tech and even some times to speech for some individuals. This can include full Time AAC user, part time, intermittent ect.
Nonspeaking: not i didn't use the term non verbal because they aitistic community is purposely trying to move away from this
Verbal/ speaking: individuals whose primary (but not always only) form of communication is through vocal speech, while they are often referred to as verbal, there is some movement to change the term to speaking autistics. Verbal/Speaking autistics often rely on more than one mode of communication including intermittent, part time AAC use
Semi-verbal: Individuals who have speech that may be unclear to others or have a limited speaking abilities that come with extreme difficulty,
Intermittently non speaking: individuals who primarily rely on vocal speech but whose speech is unreliable, and can often stop working partially or entirely for short to long periods of time unpredictably. Though some individuals can predict sometimes when this will happen, but it is not consistently predictable.
Intermittently speaking: Individuals who are primarily non speaking but can have some use of speech from time to time. This is often with great effort and vastly unreliable and unpredictable.
*Note* the last two terms may appear very similar at first glance but the order is really important and
These term can be used in many combinations but but can also stand alone and it alll depends on individual preferences . For example someone might say they are an intermittently nonspeaking, part time AAC user, or they might just say they are a part time AAC use,. At the same some will only idefy with how much they use AAC, while others with how much they use speech. And as said above many will mix and match as fits both them and context of the situation. At the end it’s up to the individual to decide which term they use for themselves and which they identify with, and I hope this gives at least a bit of a baseline for knowing and understanding these commonly used term.
Monday, April 1, 2019
Recwntly i have been able to manage to upgrade my AAC device to a brand new ipad pro 11 inch! Intially i wasn super excited! I couldnt wait to get a new case and use my new device! Well that hit a few hurdles. It turns lutthere were very few quality drop proof cases and no water proof cases at all when i first got it. I wasnt too suprised at first given the 11 inch is a pretty new ipad, but givenwater proof cases are a muat formy basicbeeds asan AAC user this meant using my older ipad which had a water proof case as my main aac and only using the new device in home until i could get a water proof case. It has been several months and so far i have only found one water proof case for this ipad, no other companies seem to be making any water proof cases for the newer ipad models at all! Whas more my go to brand life proof which is known for their water proof cases does not appear to have any olans to make cases for the newer models!
I did end up getting that one casw and i was so so excited i was checking the mail every day, thinking it would be even better than life proof! Only to get the case and be massive,y disapointed as i can barely tyoe with the case on which is a major flaw, also the back peels off suoer easy, the screen protector messes up ohoto quality and it also messes up speaker sound a bit, italso feels a bit sharp on the edges. all of which are really disapointing cause i honestly want to love this case so much! Thiswas a case i hadbeen hoping for ll thise flaws! it has features like back mounting abilities i had longed for! i plan to contact the company and see what can be done! Because i believe they can do better!
Why has everyone stopped making waterproof cases? These cases are a life line for so many of us! We need good drop proof water proof cases!
The diffrence between havinga goodwater proof case and not having one is the diffrence between a 500 to thousand dollar piece of assitive tech not being ruined when caugh out in the rain, being able to keep your communication device by the pool or at the beach wkthput fear oreven inor nearthebath orshower! Itmatters because waterproofing at ipx67 to ipx68 isorivides more access to communication in all enviorments!
And this doesnt just benefit aac users and the disabled community it also benefits the general public too! People love to read tablets pool side or work on the beach or by the pool, and lets be honest anyone can get caught outin the rain so really water proof cases benefit litterally everyone! I used to believe waterproof cases should be the minimal standard for a case because of this even! We need more companies making them and swlling them! So wny arent they?